Helping Families Affected by Huntington's Disease
The Jannie Project Foundation's mission is to empower families who are afflicted with Huntington's Disease and to work to being able to provide financial, physical, emotional and educational support in terms of caring for the needs of the family member who has been professionally diagnosed with Huntington’s Disease and who are now living within specific phases of the disease.
Human values are an important part of the make-up of the Foundation and we champion people’s rights by maintaining the following value system within our work and interaction with families, care-givers, medical professionals and our donors: • Involved • Compassionate • Transparent • Integrity • Supportive
To alleviate, as much as possible the stress and trauma experienced by both sufferer of Huntington’s Disease and his/her family members who are having to care for him/her and who may be without many resources.
Disclaimer: We emphasize that we are neither medical professionals, nor are we affiliated with the researchers and/or laboratories mentioned on our pages. The information we present is intended for informational review purposes only and should not be construed as offering diagnoses or recommendations. We operate as a not-for-profit public service organization, and our funding is obtained entirely from private sources.
What do we do?
We improve care and offer specific financial support services for people with Huntington's disease,educate their families and professional care givers and we champion people's rights. You can find out more about Huntington's disease and the work we do here at the Jannie Project Foundation in the below links. The NPO Charity & Foundation has various means of raising funds and sourcing donors in order to carry out its function, objectives and work.
Get in touch today and start making the difference.
In alignment with a professional care giving organization, we care for those in need and afflicted with Huntington's disease, aid families in the day-to-day care requirements whilst protecting their dignity.
Learn about the origin of our Legacy Project Foundation and our inspiration behind the formation of our foundation and charity.
Jannie's story is characteristic of what happens to individuals, spouses and families when they are diagnosed with this degenerative and terminal illness.
Huntington's disease is a hereditary neurological condition that runs in families. Those who are naturally born to a parent who has Huntington's disease have a 50:50 chance of receiving the gene. Most persons with Huntington's disease exhibit symptoms from their thirties. About 5-10% of patients get symptoms before the age of 20 (Juvenile Huntington's disease).
Donations and Fundraising
The Jannie Project Foundations NPO was founded with the objective of providing physical and emotional care through financial support and provide resource and research advice and care for people living with Huntington’s Disease within South Africa.
The Jannie Project Foundation's mission is to empower families who are afflicted with Huntington's disease and to work to being able to provide financial, physical, emotional and educational support in terms of caring for the needs of the family member who has been professionally diagnosed with Huntington’s Disease and who are now living within specific phases of the disease.